Doctors, nurses, therapists and social care staff working together to help people with Parkinson’s disease in Hull have won two major prizes for outstanding excellence at a national awards ceremony.

UK Parkinson’s Excellence Network, supported by Parkinson’s UK,  has presented its “Winner of Winners” award to the team from Hull University Teaching Hospitals (HUTH), City Health Care Partnership (CHCP) and Hull Clinical Commissioning Group (CCG) in recognition of their pioneering work.

The team, based at the Jean Bishop Centre in East Hull, was also named winners of the “Innovation in Practice” by the network, which has 7,000 members and is seen as the driving force behind improvements in the care of people with Parkinson’s and frailty.

Consultant Geriatrician Dr Tom Mace, who leads the Hull team, said: “We are proud and humbled with this award. It’s testament to the hard work and dedication of everyone involved in creating a unique, innovative hub to help people with Parkinson’s and their families live well.

“The integrated service makes tangible improvements in the quality of life for people and their carers. We work together to help people achieve their goals, ensure they feel supported and knowledgeable about their condition and reduce troubling symptoms and emergency hospital admissions.

“We hope that by sharing our learning experience from the hub, we will inspire and encourage colleagues across the UK to discuss and consider working in an integrated and holistic fashion across organisations and services, ensuring that people living with Parkinson’s and their carers and families experience improved continuity of care.”

Parkinson’s disease is a progressive disorder of the nervous system which causes parts of the brain to become more damaged over time. Around 1 in 500 people are thought to be affected by the condition. There is no cure although treatment can help reduce main symptoms of involuntary tremors, slow movement and stiff and inflexible muscles and maintain a good quality of life for as long as possible. It is a systemic disease which can affect the whole body and other symptoms can include anxiety and dementia.

Hull’s “Parkinson’s hub” was commissioned by Hull CCG. Members of Parkinson’s UK were consulted and listed education, quick access to specialists, expertise from healthcare professionals and quicker medication changes as priorities for a new community-based, multi-disciplinary service offering comprehensive assessments.

It now provides vital support to people with Parkinson’s, their carers and their families in one place, preventing multiple visits to different clinical teams at different locations around the city.

The hub pioneers a multi-disciplinary approach, with health specialists working with social care staff as well as private and voluntary organisations to support people with Parkinson’s. The team assesses general health, nutrition, swallowing, speech issues, oral health, sleep, impulsive compulsive disorder, continence and bowel function and direct people to other services provided by charities and social care.

As well as working proactively, the team also has the ability to respond to health-related issues quickly.

The Hull approach has prevented many emergency hospital admissions, allowing people with Parkinson’s the chance to live well and as independently as possible in their own homes with the right support from the right health care professionals.

The UK Parkinson’s Excellence Network announced its winners at a virtual award ceremony co-hosted by Parkinson’s UK’s President Jane Asher and Terence Manning, a former head teacher living with Parkinson’s, who judged entries.

The Hull team saw off competition from the “Sharing, Learning and Education” and “Person-Centred Care” award winners to be named “Winner of Winners” and claim the Excellence Award.

The judges, including a panel of Parkinson’s health and service professionals, as well as patients, praised the Hull hub for its overwhelming dedication to pioneering good practice and striving to improve the experience of people with Parkinson’s.

They said: “It is a great project that has people affected by Parkinson’s at its very heart. It has received excellent service-user feedback. It is a really comprehensive, joined-up and holistic service for patients and good for multidisciplinary teams’ skill sharing.”

Dr Donald Grosset, Clinical Director of the UK Parkinson’s Excellence Network, said: “This year, the quality of entries was exceptional and I would like to congratulate Hull University Teaching Hospitals NHS Trust, City Health Care Partnership, NHS Hull CCG for a great team effort on their well-deserved success, outstanding feedback and for being at the forefront of pioneering truly innovative Parkinson’s care.

“We were impressed by the exemplary care given to people with Parkinson’s and the difference the hub is making to people’s lives. It shows the difference we can make by working in collaboration. “

Dr Mace added: “The team would like to thank all those who assisted this work including colleagues from CHCP, HUTH and Hull CCG. Particularly, we would like to thank Dr Alec Ming and Lesley Windass for their ongoing support.”

Wards, clinics and offices at Hull Royal Infirmary and Castle Hill Hospital have been fitted with new LED lighting to reduce the impact of Hull’s hospitals on the environment.

Hull University Teaching Hospitals NHS Trust (HUTH) has introduced 20,000 LED light fittings at both hospitals and hospital buildings across East Yorkshire to cut its energy bill.

The major relighting project, overseen by HUTH’s capital team, began in December 2020 and has just been completed.

Marc Beaumont, Head of Sustainability, said the LED lighting switch was part of HUTH’s Zero Thirty campaign, launched in the summer, to be a UK leader in tackling the NHS’s impact on climate change.

He said: “We’ve set ourselves the ambitious target of becoming the first hospital trust in England to achieve net zero carbon emissions by 2030.

“The completion of the lighting project next month means our plans are gathering pace. We have said we will not stand by and do nothing and this is just the first project of many that will be undertaken by the trust over the next nine years.”

Other projects include the insulation of roofs and external walls to reduce heating loss, the use of wind and solar power to general electricity and the replacement of gas-fired boilers with air source heat pumps.

These projects focus on one of our largest source of emissions, the buildings that we occupy. However, we’re looking at how we can reduce carbon emissions from everything we do, how we treat our patients, the drugs we use and how we travel to work.

HUTH is also constructing a solar panel field in Cottingham that will to generate all of Castle Hill hospital’s day-time energy needs during the summer months.

Congratulations to liver nurse specialist, Dianne Backhouse, who has been announced as the deserving winner of the Nurse of the Year award at the Nursing Times Awards 2021.

Last night, in a glittering ceremony held at the Grosvenor House Hotel on Park Lane, London, nurses and organisations from across the profession were honoured across 25 categories in a night of recognition dedicated to celebrating exceptional achievement.

Following a rigorous judging process, Dianne emerged as the winner of the evening’s final and arguably most coveted award, Nurse of the Year. She earned the title based on her work to develop the role of the liver nurse specialist at HUTH as well as for the work she has carried out to improve care for her patients with liver disease and support them to stay at home.

The judges were won over by Dianne’s innovative, patient-focused approach and genuine impact on patient care. Before her appointment at the trust, there was no hepatology specialist nursing which was greatly needed; working with the matron and consultants she established a job plan to fill this gap.

Steve Ford, editor of Nursing Times, said:

“Every year, the Nursing Times Awards showcase the innovation and best practice of nurses and midwives across the UK, providing an opportunity to celebrate and share all that is good about the nursing profession.

“But I think it’s safe to say that 2021 is special. The past 18 months have once again seen truly incredible work by nursing staff, as the unprecedented and ongoing challenge posed by the pandemic and its impact on services continues. Their efforts deserve our thanks and recognition.

“Having read through the judge’s comments on our winners, I know we are giving awards to some very, very special individuals, organisations and projects.”

Discover the complete winners list at awards.nursingtimes.net/2021-winners.

A charity which is working to develop “dose-on-demand” radiotracers with improved detection and personalised treatment for patients with cancer, heart disease and dementia has taken a big step towards its goal with the delivery to Castle Hill Hospital of a consignment of UK-leading PET-CT scanning and research equipment.

Prof Nick Stafford, founder and Chair of the Daisy Appeal, said the arrival of the 30-tonne GE Healthcare GenTRACE  600 cyclotron is “a very exciting day for the Charity and the healthcare community in our region.”

Prof Steve Archibald, Professor in Molecular Imaging at the University of Hull, said the technology will maximise benefits to patients from across East Yorkshire and Northern Lincolnshire by making available a wide range of imaging and diagnostic techniques.

Prof Archibald added that his team will be able to attract more clinical trials to the region. Prof Stafford said the project will also bring considerable economic benefits including raising the region’s profile with facilities which are unique in the UK, and generating high-quality jobs.

The cyclotron components arrived at Castle Hill Hospital, Cottingham, and were transferred in a series of crane lifts over the roof of the admin building to the loading bay at the new Molecular Imaging Research Centre (MIRC).

The pieces will be assembled in the new building over the next two weeks and the cyclotron will become operational early in 2022 as the latest piece in a jigsaw which Prof Stafford has been working on since he launched the Daisy Appeal in 2000.

The Daisy Appeal Medical Research Centre opened at Castle Hill Hospital in 2008 and was followed, in 2014, by the opening of the Jack Brignall PET-CT Scanning Centre, housing the first in a new type of Siemens scanner in the country.

But with the radiotracers used in the Jack Brignall Centre having a short life span, the Daisy Appeal’s vision was to raise funds for the MIRC and pursue a “dose-on-demand” approach by making their own isotopes.

The total cost of the new centre is around £8.5m, including equipment to the cost of about £3.5m, about £1m of which is accounted for by the cyclotron components.

Once up and running the centre will initially be able to produce Fluorine 18 radiotracers, which are currently used in most scans but which the Daisy Appeal previously had to source elsewhere. During the next two or three years the centre will also be able to produce Carbon 11 radiotracers, which have great potential for neurological and cardiological use and will open up other opportunities.

The new building creates the opportunity for the isotopes to be piped directly from the cyclotron to hot cells in the room next door, where the product will be processed, checked and then delivered through a hatch in the wall direct to the Jack Brignall Centre for injection into patients.

Prof Archibald said: “The technology from GE Healthcare matches our unique approach to ‘dose-on-demand’ radiotracer production which will make a wide range of imaging and diagnostic techniques available. This will maximise benefits to local patients.

“The provision of cutting-edge cyclotron technology in Hull elevates us to the level of a handful of clinical sites in the UK and, when combined with our expertise and our own unique technology, will enable us to deliver improved clinical imaging to diagnose and monitor treatment response in cancer, cardiac and neurological patients.

“The technology will also improve our research, which is already internationally competitive, and attract clinical trials to Hull to further improve standards of patient care.”

Prof Stafford said: “The delivery of the cyclotron really sees the whole PET-CT project finally coming to fruition. The MIRC will become operative next year, at which point patients will benefit from our ability to manufacture personalised radiotracers tailored to the requirements of their disease on site.

“The cyclotron puts us in the top tier for this work in the UK and also opens up the opportunity for us to make carbon based radiotracers which have exciting new applications in cancer, cardiac and neurological imaging. It is a very exciting day for the Daisy Appeal and the healthcare community in our region.”

The Daisy Appeal has raised more than £20m to fund cutting-edge research and state-of-the-art equipment and facilities. Hull-based construction company Hobson & Porter built the Jack Brignall Centre and the new MIRC, which is due to be formally handed over to the charity later this year.

Claire Levy, Daisy Appeal Fundraiser, said: “One of the most important aspects of fundraising is having the ability to show donors how their money has been used to deliver on the charity’s aims and objectives.

“The Daisy Appeal has already brought enormous benefits to patients from across the Hull and Humber region with the Medical Research Centre and the Jack Brignall Centre, and the delivery today of a cyclotron is another huge step forward.

“We are grateful to all the businesses, communities and individuals who have played a vital part in helping us to reach this milestone, but the journey continues. We are closing in on our target of £8.5m to complete the MIRC and we will then focus our efforts on meeting the substantial running costs.”

To find out more about the Daisy Appeal please visit https://daisyappeal.org/

You can now securely access your outpatient letters and hospital appointments electronically via the NHS App.

The NHS App already allows you to see your vaccinations status, order repeat prescriptions, book and manage GP appointments, get health information and advice, view your NHS Number and view your GP health record securely.

The new service, which is completely free, will link your hospital information in the App, allowing you to view your hospital outpatient appointment letters and appointment details and add information to your record, such as measurements, data from devices such as fitness watches and symptoms.

In the future it will also give you secure online access to hospital scans and test results and it’s all thanks to some extra technology that we have added to the app for our patients.

How to register

1. Download the NHS App

First you need to register for the national NHS App, which you can do by searching for ‘NHS App’ in the App Store or Google Play and following the instructions. If you don’t have a smart device you can also sign up and access the service via a web browser.

You will be asked to follow a number of steps to verify your identity so that you can securely log in and access all of the services in the national NHS App.

2. Sign up to our additional service in the NHS App, run by Patients Know Best (PKB)

To get access to your hospital appointment letters, you need to follow a few further steps:

• Open ‘messages’ in the NHS App and select ‘consultations, events and messages’
• A message will open asking if you agree to share your NHS login information with Patients Know Best. Click ‘I agree’
• Register with your email address, a strong password and a security question
• Accept the privacy agreement and click the ‘register’ button
• You’re all set! Next time you log into the app you will be able to see both your GP and hospital appointment information.

Please be reassured that whilst PKB is our partner in providing this service, they do not have any access to your health information, which remains secure. Your information doesn’t move from the NHS and you will be the only person who can view the information available through the App.

The global Covid pandemic has been a frightening and uncertain time for us all. Personally and professionally, it has made us reflect and made us grateful for what we have. We appreciate being able to have friends and family around us more, we’re thankful for our freedoms, and we’re grateful for a health service which has spearheaded the battle against Covid-19.

But not everyone has been so fortunate. Some of us have already lost friends, co-workers and loved ones to the virus, and many of our own staff with family and loved ones abroad have felt concern for their wellbeing and the anguish of not being there to help.

Among those watching Covid-19 claim lives in her home country was Sri Lankan born critical care consultant, Dr Pumali Gunasekera. Having seen patients come in and out of Hull’s ICU with the virus for the past 18 months, she knows just how debilitating Covid can be and how important it is for patients to receive timely medical care.

Moved by images of countries like Sri Lanka and India struggling to cope with the sheer numbers of Covid infections, she set about gathering equipment and supplies which could be used to aid the international Covid response.

Dr Gunasekera appealed to colleagues throughout the trust for unused or obsolete equipment and supplies that could be sent abroad; and the response she received was amazing.

“I was overwhelmed with the response,” says Dr Gunasekera. “I received donations from all over; emergency care, theatres, ICU outreach, clinical practice educators and more, all with equipment which could no longer be used here, but which was still suitable for use abroad.

“Respiratory physicians Dr Pinder and Dr Crooks and senior matron Vicky Sharman helped me to source CPAP machines that were surplus to requirements and these were very kindly released by chief executive, Chris Long. Many of the departmental housekeepers also helped by sorting through their stores and finding suitable supplies to send over.”

Among the items sent to hospitals in Sri Lanka were more than 35 CPAP machines, a variety of airway and breathing equipment including oxygen masks, NIV masks, and laryngoscopes, plus PPE to protect clinical staff including surgical face masks, FFP3 masks and gowns.

And the recipients couldn’t have been more grateful. Chief nursing officer for National Hospital Kandy in Sri Lanka, Mr Jayamanne, wrote to Vicky Sharman upon receipt of a donation to say thank you.

“As a fellow nurse facing similar pressures of patient care and flow in a pandemic, I find it inspiring that you were able to think of the welfare of patients on the other side of the world during this crisis.  A true embodiment of the “missioner of health” pledge that we take”.

Members of the College of Anaesthesiologists and Intensivists of Sri Lanka also wrote to Chris Long with their thanks, having distributed CPAP machines among 15 of the hospitals they support.

“With the emergence of the third wave of the pandemic, patients requiring intensive care services in Sri Lanka have risen within a very short period of time. As a result, the healthcare system is saturated and overburdened due to a surge of admissions of critically ill, both COVID and non- COVID patients, to the intensive care units amidst limited resources.

“We greatly appreciate your donation and thank you for your generosity towards uplifting standards of critical care facilities [in our ICUs] in the country.”

Dr Gunasekera adds:

“This equipment could no longer be used by our trust, so it’s fantastic to know that it’s been put to good use in hospitals where it’s really needed. The compassion for others and the goodwill shown by colleagues here has been really uplifting, and just shows that even in the tough times, in the middle of a global pandemic, we are all in it together.

“On behalf of the ICU team and all the receiving hospitals over in Sri Lanka, I’d like to say a huge thank you to everyone who helped with the appeal.”

We’re not on our phones! It might look like we are but only because we need to be.

From Monday, our wards at Castle Hill are switching over to digital nurse care records. This means our ward-based staff will be using hand-held devices that look similar to phones to record vital information about their patients and their treatment plans.

Please be reassured that our staff are not using these hand-held devices to browse through social media, check emails or use them for any other business. It’s all about patient care and our mission to switch from paper records.

Thanks very much for help, support and understanding as we make the transition to this new digital way of working to provide the best possible care for you and your loved ones.

Hospital staff caring for young people with cancer are launching a new service to help them when they lose their hair.

The Teenage Cancer Unit at Castle Hill Hospital is teaming up with the Living With and Beyond Cancer team at the Queen’s Centre to set up a new wig service.

Young people who come to the unit for treatment will now be able to purchase wigs in modern styles and in vibrant colors including ombre, blue and purple to help boost their morale if their hair falls out during treatment.

Claire Swift, Clinical Nurse Specialist at the Teenage Cancer Unit, said: “Losing your hair during treatment for cancer can be traumatic for everyone but it’s especially difficult for young people.

“This new service can make someone feel better about themselves when they’re already going through so much.”

Claire and Youth Support Co-ordinator Charlene Kent realised there was a need for the service after referring their patients to the Living With and Beyond Cancer team at the Queen’s Centre.

Charlene said: “They have a wigs service but the wigs they have were not really age-appropriate for the people we look after in our unit.”

Working with Sarah Guest from the Living With and Beyond Cancer team, they were given some free samples of modern hairstyles from Welsh wig company Lush to pass onto patients for feedback.

Charlene said: “They loved them so we knew this was something we wanted to do.”

The team has purchased a small number of wigs from the company and patients have added to the stock by donating wigs they no longer need.

Patients will be able to purchase a wig for £15 with available packages including the wig, a wig stand, hair brush and products to wash, condition and style the wig.

Jane Griffin, who volunteers for the Living With and Beyond Cancer team, will help them choose the wig that suits them best, fit it and show them how to care for their new hairstyle.

*If you have a wig suitable for a teenager or young person that you would like to donate, please contact the team on:01482 461091/01482 461326 .

*Photograph: Charlene Kent, left, and Sarah Guest with their new display cabinet for young people’s wigs