Brain and Central Nervous System (CNS) Therapy Team

Patient Experience

  • Reference Number: HEY1045/2024
  • Departments: Physiotherapy
  • Last Updated: 31 October 2024
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Introduction

We understand that this can be a difficult period, and this leaflet has been produced to provide general information about the Brain and CNS Therapy Team. We hope this leaflet can answer most of your questions, though not all the information inside may be relevant to you. This leaflet is not intended to replace the discussion between you and the Brain and CNS Therapists but may provide a starting point for your discussion.

If after reading this you have any concerns or require further explanation, please contact the team on tel: 01482 461666.

Who are the Brain and CNS Therapy Team?

We are a community therapy team based at Castle Hill Hospital, providing specialist physiotherapy and occupational therapy to patients with brain and CNS tumours.

We predominantly provide therapy in your own home or at times in the Queens Centre for Oncology and Haematology, Castle Hill Hospital. We are Macmillan professionals but see patients with all grades of tumour, cancerous and non-cancerous.

How can the team help me?

Below are some examples of things the team may be able to help you with:

  • Exercise to help with strength and balance
  • Assessment and management of your mobility
  • Provision of walking aids, wheelchairs and equipment to aid everyday tasks
  • Managing day-to-day tasks e.g. cooking and housework
  • Help with cognitive difficulties, coping strategies, mindfulness
  • Planning/pacing/grading advice
  • Tiredness and fatigue management
  • Help accessing leisure and social activities
  • Onwards referrals for home adaptations
  • Grant applications and referrals to welfare rights
  • Support returning to work or accessing voluntary work
  • Signposting to other services i.e; support groups/charities

Who do we see?

Our Macmillan therapy team sees patients with cancerous and non-cancerous tumours and our service is open to:

  • Adults over 18 years of age
  • People with primary brain or CNS tumours
  • Those with a Hull or East-riding GP. If you live outside this area feel free to contact us, we may be able to arrange therapy from a team in your area
  • People with a goal for therapy that can be worked towards

Who we cannot see?

We are unable to see those with metastatic disease, brain injuries or other neurological diseases. Metastatic tumours are ones that have spread from elsewhere in the body.

How do I contact the Brain and CNS Team?

You can contact the team by telephone on tel: 01482 461666

The team is available Monday to Friday from 08:00 to 16:00

If we are not in the office, please leave a message on the answering machine and we will contact you as soon as possible. Our voicemail is checked regularly. We will then agree a date to visit you at home to undertake an assessment so we can jointly agree on how the team can best support you. The visit will last approximately 1 hour. If you prefer to meet at Castle Hill Hospital please let us know and we will try to accommodate this. You can also ask other health professionals to refer you to our team.

You can email us at: hyp-r.braincnstherapyteam@nhs.net

You can also write to us:

Macmillan Brain and CNS Therapy Team

Queens Centre for Oncology and Haematology

Room 0288 Therapy office

Castle Hill Hospital, Castle Road

Cottingham, HU16 5JQ

Useful Contacts/Websites:

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